Albuquerque teen with rare cancer looking for treatment options out of state

ALBUQUERQUE, N.M. (KRQE) – A high school senior’s life changed in a matter of days, he is one of only a handful of people in the U.S. with a rare form of cancer.

His doctors in New Mexico said they don’t have a treatment option for him and don’t give him long to live. Even the Mayo Clinic and St. Jude Hospital aren’t options, but, he’s still holding out hope.

Nineteen-year-old Kyle Osborne likes to do what most boys his age enjoy doing.

“I like to play basketball, play soccer,” said Kyle Osborne.

He should be having fun his last year of high school, playing on the soccer team. But, everything changed in April.

“It changed everything,” said Kyle.

The “it” he’s referring to is cancer, not just any cancer a very rare type.

“I’m one of like the only three or four people to have it. And I have the greatest number of tumors,” said Kyle.

A trip to the doctor for leg pain ended with multiple tests showing 17 tumors. Within days, he would completely lose all strength in his legs.

“They extend all the way basically from his tail bone top his brain stem,” said Aaron Osborne, Kyle’s dad.

The diagnosis: a word difficult to pronounce, and a reality even harder to accept.

“Myxopapillary Ependymoma,” said Aaron. “They can’t operate anymore because it’s too dangerous. Radiation didn’t do nothing.”

Doctors have given Kyle months to live, but his friends and family refuse to lose hope.

“Because nobody knows. We are going to fight as hard as we can. Make him as happy as we can,” said Aaron.

A family friend has started Kyle a GoFundMe page. His dad has missed more than two months of work taking care of his son.

“Paying for his prescriptions and by chance if we do have the opportunity to go somewhere else to seek help, then I’ve got to be able to pay for all of it,” said Aaron.

Kyle is now adjusting to his new normal. Figuring out ways to do the things he enjoys, but in a wheelchair.

“The geometry and everything to shoot the basketball is a lot different, hard to get used to, but its fun,” said Kyle.

However, there are some things cancer can never change.

“A gentle giant, kind heart,” said Aaron.

Kyle had to miss his prom, so his girlfriend brought prom to him in the hospital, they got dressed up and had a nice dinner. provides commenting to allow for constructive discussion on the stories we cover. In order to comment here, you acknowledge you have read and agreed to our Terms of Service. Users who violate these terms, including use of vulgar language or racial slurs, will be banned. Please be respectful of the opinions of others. If you see an inappropriate comment, please flag it for our moderators to review.

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